The role of patients in infectious disease research: from study participants to scientific partners

Friday, July 9, 2021
11. Other, 1,5-hour Integrated Symposium
11c. Other 2696 4:15 PM > 5:45 PM The role of patients in infectious disease research: from study participants to scientific partners 16. Integrated Sessions – 4 11c. Other

Healthcare professionals (HCPs) are increasingly open to patients playing a more active role in their own treatments as healthcare moves towards a patient-centric model. However, this paradigm shift is not currently reflected in the roles patients play in infectious disease research; HCPs and their patients have the potential to become partners who generate science together. In this Integrated Symposium we will explore how and why HCPs can partner with their patients in infectious disease research; we will examine what has worked well for other therapy areas, where we are in infectious disease and what our opportunities are, as well as our next steps as a research community. We look forward to seeing you there.
4:15 PM 2696-1 Introduction and objectives 4:22 PM 2696-2 Our commitment to patients and infectious disease > P. Pol VANDENBROUCKE (New York) 4:25 PM 2696-3 An emerging science: making the case for patient-partnered research > N. Nikhil WAGLE (Boston) 4:35 PM 2696-4 Finding funding: how foundations can facilitate patient-partnered research > G. Gemma BUCKLAND MERRETT (Brighton) 4:45 PM 2696-5 Patient-partnered publications: the journals’ perspective > A. Amy PRICE (Stanford) 4:55 PM 2696-6 From concept to action: three case studies of patient participation in research (EKPF) > D. Daniel GALLEGO (Torrent) 5:05 PM 2696-7 From concept to action: three case studies of patient participation in research (IAPO) > N. Neda MILEVSKA KOSTOVA (Skopje) 5:15 PM 2696-8 From concept to action: three case studies of patient participation in research (Sepsis Alliance) > T. Thomas HEYMANN (San Diego) 5:25 PM 2696-9 Discussion and Q&A 5:40 PM 2696-10 Summary and closing remarks by the Chairs

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